LYNNE SWANN

Lynne Swann has been one of PE Pearls Ladies Circle No. 19’s regular beneficiaries since 2019.

Lynne is a young lady (currently 18 years old) who suffers from Cerebral Palsy, Epilepsy and Sandifer Syndrome, and for this reason has many special requirements, all of which cost quite a bit of money. We try to help where we can but also rely on community donations to do so….

We are currently purchasing and donating adult nappies to Lynne monthly, there are however various additional items that Lynne needs on a regular basis, as follows:

  • Fycompa R880
  • Lancap R350
  • Soflax R200
  • Aurora School Fees R1650
  • Wet wipes R70
  • Melegi/Nan Perlagon R500
  • Purity Porridge R90
  • Purity R200

As you can see Lynne’s monthly needs are not cheap and her mom, Tracy Swann, is a stay at home mom who relies on family and fundraising/donations.

Please consider making a monetary donation towards these requirements….

PE Pearls LC19, Nedbank Cheque Account No. 1014498406, Branch Code 198765

(Reference: Lynni)

To follow Lynni’s Journey on Facebook, please go to https://www.facebook.com/senttometolove/ or go to https://www.backabuddy.co.za/champion/project/lynnis-journey to see how you can assist.

What is Cerebral Palsy?

“While Cerebral Palsy (pronounced seh-ree-brel pawl-zee) is a blanket term commonly described by loss or impairment of motor function, Cerebral Palsy is actually caused by brain damage.  The brain damage is caused by brain injury or abnormal development of the brain that occurs while a child’s brain is still developing — before birth, during birth, or immediately after.  Cerebral Palsy affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. It can also impact fine motor skills, gross motor skills and oral motor functioning.”

(Extract from MyChild™ CerebralPalsy.org website – an information website owned by attorney Kenneth A. Stern) – https://www.cerebralpalsy.org/about-cerebral-palsy

What is Epilepsy:

“Epilepsy, which is sometimes called a seizure disorder, is a disorder of the brain. A person is diagnosed with epilepsy when they have had two or more seizures.  A seizure is a short change in normal brain activity.  Seizures are the main sign of epilepsy. Some seizures can look like staring spells. Other seizures cause a person to fall, shake, and lose awareness of what’s going on around them.”

(Extract from Centers for Disease Control and Prevention website – Content source: National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health; September 30, 2020) – https://www.cdc.gov/epilepsy/about/index.htm

What is Sandifer Syndrome:

“Sandifer syndrome a rare disorder that usually affects children up to the ages of 18 to 24 months. It causes unusual movements in a child’s neck and back that sometimes make it look like they’re having a seizure. However, these symptoms are usually caused by severe acid reflux, or gastroesophageal reflux disease (GERD).  The main symptoms of Sandifer syndrome are torticollis and dystonia. Torticollis refers to involuntary movements of the neck. Dystonia is a name for writhing and twisting motions due to uncontrollable muscle contractions. These movements often cause children to arch their backs.”

(Extract from Healthline website) – https://www.healthline.com/health/sandifer-syndrome#symptoms